Family Visits and Memories

Hi folks! Things have gotten a little scary lately. I’ve been having more seizures. My wife, Alex, is helping me with this blog post.

Last week I had a few more intense seizures than I’ve had before. I came close to losing consciousness and felt very strange, like I couldn’t stop remembering names of lots of people I didn’t know. It reminded me of the first seizure I ever had, which was what sent me to the ER and led to my diagnosis. My doctors have had to give me a lot of medicine to prevent seizures from happening.

After a seizure on Friday, my head hurt a LOT and I got very nauseous. I went to the Haven Hospice inpatient care center for a night, and it was nice, but it wasn’t home. Belmont visited me, but she started barking at my nurse, so she had to go home again. We were all surprised because she usually loves people.

Belmont cooperated for about five minutes.

Some good things have happened recently, though. Alex and I celebrated the ninth anniversary since our first date on February 21. We got a head start on anniversary celebrations by going to a dance on Valentine’s Day. We participated in a group swing dance lesson, but I’m not sure anything stuck. We still had fun and got to get some nice new clothes.

Fresh duds! Love the heart lights.

Special Agent Cooper has been making me laugh a lot. He’s a great dog. I’m really glad we got him.

Silly dawg, good buddy ^_^

My family has been staying with me since Saturday. My parents, Alex’s parents, my sister and her husband, and Alex’s brother are staying at the house as much as they can. My hospice nurse let us know that the changes happening to me right now mean¬†that the end is approaching, and I understand what’s happening. I can tell that I feel strange, and I sleep a lot. Everyone is helping me get food I like (Leonardo’s pizza!), playing board games with me, and watching videos together. Last night we had a huge family dinner and shared a lot of memories about funny things like when Alex’s dad lit the roof of their shed on fire and every single neighbor called the fire department. Our parents talked about how they met. Justin liked the stories about things catching on fire.

I’m enjoying my time with family and my dogs. My cousin, Carson, is visiting with me today. His son drew me an awesome picture of BB-8 from Star Wars because I gave him a BB-8 toy last time they visited. I really like giving him gifts. My dad often plays with the toys I get for Carson’s son, and I have to tell him not to break them.

I catch a quick nap while Carson catches up with the dogs.

Another good thing has been happening lately. Lots of back and foot rubs ūüôā

Mom is great at foot rubs, and dad can get a vice grip on my shoulders.

No Bucket List Vacationing = No Problem

When I was first diagnosed Alex and I had big plans to do big bucket list travelling (aka, Tokyo, Seoul, etc). That quickly changed though when concerns about immune system safety, money saving for care, and dealing with fatigue set in. Starting towards the beginning of the year Alex and I decided to take micro vacations once a month. To this day I don’t think I’d rather be in any other place than in one of Florida’s nature coast’s salt marshes. I realized that I feel rejuvenated when just taking small vacations to the places in Florida (a little Georgia too), that I’ve always gone to for a break.

When I was younger I used to go to St. Augustine and Cedar Key at least once a month while also travelling many of the back roads of central Florida (harming my old car’s suspension system). While Cedar Key may not have the best dining¬†options around, it makes up for it with¬†great comforting scenery and with nice¬†places to kayak.¬†While these days I’m not one for straight up camping, I’d like to get an RV situation going and just park near a salt marsh for a loooonnngggg time.

Alex and I enjoying the coastal breeze in Shired Island's salt marsh.

Alex and I enjoying the coastal breeze in Shired Island’s salt marsh.

 

Our big vacation spot each month is up near St. Augustine in Vilano Beach. We love going there because it is the most dog friendly beach community we’ve run across so far. ¬†Not only can our dogs come and enjoy hanging out on the porch sniffing the beach air, but we get to see and meet all sorts of cute dogs as well. Our dogs are our family and if we can’t bring them along we are much less likely to go somewhere. We miss em’ to much and feel too guilty if they are boarded.

Still not fans of the water :(

Still not fans of the water ūüôĀ

 

As we’ve been doing this¬†for a while¬†now I still feel that this is the kind of vacationing I love the most. Sure if someday I’m able to go on a wonderful culinary adventure to Seoul I won’t complain one bit, but until then I’m one happy camper doing what we’re doing now.