Hi folks! Things have gotten a little scary lately. I’ve been having more seizures. My wife, Alex, is helping me with this blog post.
Last week I had a few more intense seizures than I’ve had before. I came close to losing consciousness and felt very strange, like I couldn’t stop remembering names of lots of people I didn’t know. It reminded me of the first seizure I ever had, which was what sent me to the ER and led to my diagnosis. My doctors have had to give me a lot of medicine to prevent seizures from happening.
After a seizure on Friday, my head hurt a LOT and I got very nauseous. I went to the Haven Hospice inpatient care center for a night, and it was nice, but it wasn’t home. Belmont visited me, but she started barking at my nurse, so she had to go home again. We were all surprised because she usually loves people.
Some good things have happened recently, though. Alex and I celebrated the ninth anniversary since our first date on February 21. We got a head start on anniversary celebrations by going to a dance on Valentine’s Day. We participated in a group swing dance lesson, but I’m not sure anything stuck. We still had fun and got to get some nice new clothes.
Special Agent Cooper has been making me laugh a lot. He’s a great dog. I’m really glad we got him.
My family has been staying with me since Saturday. My parents, Alex’s parents, my sister and her husband, and Alex’s brother are staying at the house as much as they can. My hospice nurse let us know that the changes happening to me right now mean that the end is approaching, and I understand what’s happening. I can tell that I feel strange, and I sleep a lot. Everyone is helping me get food I like (Leonardo’s pizza!), playing board games with me, and watching videos together. Last night we had a huge family dinner and shared a lot of memories about funny things like when Alex’s dad lit the roof of their shed on fire and every single neighbor called the fire department. Our parents talked about how they met. Justin liked the stories about things catching on fire.
I’m enjoying my time with family and my dogs. My cousin, Carson, is visiting with me today. His son drew me an awesome picture of BB-8 from Star Wars because I gave him a BB-8 toy last time they visited. I really like giving him gifts. My dad often plays with the toys I get for Carson’s son, and I have to tell him not to break them.
Another good thing has been happening lately. Lots of back and foot rubs 🙂