I’ve been having a lot of pain and health issues over the last month or so. With more scans and more docs looking at my scans, they now feel like I should have surgery to remove the two spots that have appeared on my scans. They think these spots are more likely recurrent cancer than radiation necrosis.
At this point I was very hopeful to join an immunotherapy study as I felt it would be the best bet to extending my life. The one I wanted to join wouldn’t take me, and the one remaining that I could join was phase one and randomized, i.e. not guaranteed to be safe or effective, and I might not even receive the treatment if I was randomized to the “standard of care arm” of the study.
So I’m going in for a traditional resection, same as the first brain surgery I had. The spots are roughly in the same area, so they will be cutting along my scar but with a little more cut to make the necessary reach. They will have to again cut my jaw muscle which is what I’m most unhappy with because it took so long to get my jaw to open wide enough to eat properly last time. Back to sub smashing ^_^
With each surgery they always talk about the risks. This one isn’t too risky and I’m choosing not to obsess about that. What happens is what happens. If God thinks it’s my time to stay or go I’m fine with whichever.
With my recent problems which include seizure like activity I am unable to drive again and am stuck at the house and reliant on family and friends for transport. I have prepared for post surgery recovery by getting an obscene amount of board and video games to nerd out on. Looking forward to having some fun!